If you need a reason why African Americans should step up when it comes to donating bone marrow, look no further than the life of six-year-old Jasmina Anema.The adorable little girl lost her battle against leukemia last night, but not before capturing the attention of the country when she asked to meet President Obama.
According to the New York Daily News, Jasmina was taken to NYU Langone Medical center, when she had trouble breathing. Doctors diagnosed her with pneumonia and she was moved to the ICU as her conditioned quickly worsened.
"Today, January 27th, at 10:55 p.m., Jasmina lost her fight against leukemia," Thea Anema, Jasmina's mother wrote.
Jasmina had a particularly deadly form of leukemia but a near perfect donor was found. Unfortunately, the cancer returned in September. The new bone marrow cells had also begun attacking Jasmina's own cells.
"Mama, no reason to cry," Jasmina told her mother when they learned that the cancer had returned. "Just think of something beautiful."
Jasmina had to cancel her original trip to the White House because she was ill, but she was determined to make the trip when she got well.
During her 10-minute meeting with President Obama, he gave the girl M&M's imprinted with his name and the presidential seal. Jasmina's mom said her daughter and President Obama were like "best buddies."
"It was just how he spoke to her, like a daddy. It was so sweet. He was really relating to her," Anema said.
President Obama asked about her favorite book and what she wanted for Christmas. Before she left, President Obama beckoned for the girl and gave her a big hug.
"It was a perfect ending for the visit," Anema said.
The best way to honor the memory of this special little girl would be for African Americans to go out and expand the donor pool. In 2009, more than 50,000 African Americans joined the national bone marrow registry and nearly 8,000 donated cord blood units. Let's double or triple that this year.
Last year, Jasmina was in need of bone marrow, but next year it could be you, your child, spouse or relative. Even if it's someone you don't know, helping to save lives is a worthy cause.
Bone marrow, which helps manufacture the components that make up blood, is used to treat 60 different diseases. Because the marrow needs to match the recipient's marrow, chances of a match increase when the donor is of the same ethnicity as the recipient.
Unfortunately, only about 7 percent, or 600,000 of the 8 million registered marrow donors, are African American, Catherine Claeys, spokesperson for the National Marrow Donor Program, told Aol. Black Voices in an interview. In addition, it's often more difficult to find a match for African Americans.
"African Americans have greater diversity in their tissue types which make it harder to find a donor," Claeys said. "The more people who join and the greater the tissue diversity, the more chance there is of finding a match. Everyone who joins has a chance to save a life."
For people ages 18 to 60 who are in relatively good health, the process of signing up could not be easier. Once you register at Bethematch.org, the organization will send out a mail-in kit that will allow you to swab your cheek for a tissue sample.
For more than 70 percent of donors, the process is as simple as donating plasma. For those who do donate actual marrow, the procedure is safely and comfortably conducted under anesthesia.
Claeys said a lack of education and awareness is to blame for the disparity in donors. African Americans also have a historically based mistrust of the medical system.
"African Americans and other minorities are underserved by the medical community, which leads to skepticism and mistrust. We are working hard to increase outreach," said Claeys.
It is a disparity that can only be resolved by our generosity and humanity.



Comments: (23)
Add a comment
By: Mike on 1/28/2010 10:54PM
God bless you and make it all better somehow. My youngest sister, I'm 10th of 12 children with 2 younger sisters, passed away 2006 of leukemia. It was so fast - appx 2 1/2 months from diagnosis to death. She was 6 yrs younger than me and was the only younger sister that sorta looked up to me when we were both much younger. We sorta had the same sense of humor as much younger kids. Of course, everything changes when you become adults but we remained close. I took the bone marrow test but it was not a match cause 'you know why'. I assume, but not sure, that all my siblings did but no match. God bless you Shirelle. Miss you.
Reply to this Comment | Report This
By: Ms.LisaJoy on 1/30/2010 12:43AM
My heart goes out to you and your family.
Report This
By: Mike on 2/01/2010 10:20AM
Thank you very much, Ms.LisaJoy.
Report This
By: Veta Harris on 1/29/2010 12:01AM
I am a 53 yr old black female, who became a bone marrow donor 4 yrs ago. The realization of doing so little to save a life gives me great pleasure. I have not been called yet, but I do hope and pray that I am able to do so. I also hope and pray that more African-Americans would sign-up. My prayers go out to the family for thier loss.
Reply to this Comment | Report This
By: sandy H on 1/29/2010 2:19AM
One one: "adorable".
Reply to this Comment | Report This
By: yaza on 1/29/2010 5:42AM
This precious child put up the good fight. God rest her soul. A beautiful angel is in heaven.
Reply to this Comment | Report This
By: topaz on 1/29/2010 7:47AM
my prayers goes out to her family. i cannot stand to see a child in pain. r.i.p jasima coz the lord doesn't want you to suffer any more.
Report This
By: lisa on 1/29/2010 9:58AM
oh this just hurts my heart to c that she had to leave so young,my prayers to the Family......
Reply to this Comment | Report This
By: anthony johnson on 1/29/2010 10:00AM
God rest Her Soul.
Reply to this Comment | Report This
By: jean on 1/29/2010 11:39AM
Say no more, I will be one of the donors. My genetic make-up comprises of many nationalities; I can't take it with me when I passover, but, while I'm here on earth I'm going to do my part in assuring life.
GOD BLESS JASMINA SOUL, AND THE HEARTS OF JASMINA FAMILY.
Reply to this Comment | Report This