
Last summer, BlackVoices.com covered the plight of "Lion King" starlet Shannon Tavarez (pictured), who found out last April that she had an aggressive form of leukemia, acute myelogenous leukemia.
The 11-year-old desperately needed a bone marrow match in order to fight the disease. 50 Cent and Rihanna were just some of the high-powered celebs to help Tavarez find her bone marrow match.
Still, Tavarez, who received an umbilical cord transplant in place of the bone marrow transplant, died last November to the astonishment of many.
She never did find her bone marrow match.
On Thursday, Tavarez's mother, Odiney Brown, went to her alma mater, Howard University, in order to continue to raise awareness for the need of more African Americans to join the bone marrow registry. "Shannon's illness caught us completely off guard," Brown, 39, said as she encouraged Howard students to sign up for the registry. "What we found last year was that there just wasn't the awareness in our community as there could have been, and I think that has really impacted the number of available black and Latino potential donors."
Even though there are more than 9 million bone marrow donors in the National Bone Marrow Program (NBMP), only 650,000 of them (or 7 percent) are black, and it is more difficult for us to find bone marrow matches than anyone else.
According to the NBMP:
"[African Americans], whose ancestors migrated from Africa, are 50 percent more genetically diverse than those with European - American heritage."
With her Shannon's S.H.A.R.E. foundation, Brown is raising awareness about the disease and providing financial assistance to families:
"The last thing that you think about sometimes when you have a sick child is keeping up with the bills."
Brown also hopes to keep her daughter's legacy alive:
"We just wanted to do something that honored her strength, the strength she showed while she was going through her illness," Brown said. "Even when she was in the hospital, she thought about the other children a lot, and she wanted to make sure that they were okay."
Suprisingly, joining the bone marrow registry is very easy. Participants need only swab their mouths in four places in order to join. Still, a misconception exists that being a donor is in some way uncomfortable:
"A lot of people think it's painful, you have to give blood or that there's some kind of marrow test," said Brown.
To become a bone marrow donor yourself, register at Bethematch.org and they will send you a kit to swab the inside of your cheeks. Will you?
Watch Tavarez when she was alive here:


Comments: (4)
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By: Xyzzy on 4/23/2011 5:59AM
That poor girl; it's good to hear her mother is using the loss so positively... I doubt I could manage to do the same.
"The last thing that you think about sometimes when you have a sick child is keeping up with the bills."
Yes and no... The parents focus on their kid's life when an immediate crisis strikes, but the rest of the time (which can be *years*), they also have to care about losing their home, having utilities shut off, etc.
I learned that much being a longtime volunteer for a local fundraiser for families with catastrophically ill kids. It sickens me that even a shadow of what was affordable with one middle-class income & insurance when I was a frequent pediatric surgical patient is now hard (at best) for anyone that isn't outright rich with the best insurance... A parent shouldn't have to choose between their child's chemo/surgery and paying the electrical bill.
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By: Carolyn on 4/23/2011 10:37AM
About 20 years ago,I registeredat a health Fair as a donor and never heard from the National foundation to confirm my registration; which I never received. At some point I called my local organization that signed me up; I was told they had no record of my regs;eventhough I showed them a drivers license and donor card. I registered again; same thing.To this day I still don't know what my status is. i'm probably too old now, but I would have loved to help this beautiful little sister. I read quite a bit about her. God Bless her and her mother.
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By: Tracey on 4/25/2011 8:42PM
NOW, YOU SEE HOW HARD IT IS TO FIND A MATCH FOR SOMEONE WHO IS MIXED BLOOD!! THIS IS WHY GOD MADE MALE AND FEMALE IN EACH RACIAL GROUP SO THAT THEY COULD MATE WITH EACH OTHER IN THAT GROUP!! EVEN NATURE PROVES THAT RACIAL MIXING IS NOT A GOOD IDEA FOR THE PHYSIOLOGICAL AND SOCIAL AS WELL AS DEMOGRAPHIC REASONS, JUST LIKE SAME SEX MARRIAGE IS RIDICULOUS AND NOT PRODUCTIVE UNIONS SUPPOSE TO BE ABLE TO PROCREATE TO ALL YOU IDIOTS THAT ARE AGAINST NORMAL UNIONS! ,
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By: spbennett on 4/26/2011 12:39AM
I'm curious as to your position on the origin of mankind. Were we all birthed from the seed of original man and original woman, therefore making us all mixed in some way? Or maybe you believe we are an evolutionary species of primates? Or maybe we just exist, particles from space that have just always been without explanation? I'm also curious how you would explain all the other people of 'pure' blood who are living with debilitating diseases.
Actually, this is isn't the place. This post was to honor the memory of a beautiful, biracial girl. Shannon.
http://palmerbennett.wordpress.com/2010/11/02/little-wise-owl/
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